National Alliance for Eye and Vision Research
Advocacy Center
Become an Advocate for Vision Research
Eye Fact Center
Press Center
Spread the Word
Tell Your Story
Link to Our Site
Resources and Links
Privacy Policy
Site Map
Press Center
About the Alliance National Eye Institute Contact Us
Become an Advocate for Vision Research - Join the Action List
Speak Up for Eye and Vision Research
Enter Your Zip Code   
May 13, 2010
CONTACT: James F. Jorkasky
Executive Director

NAEVR Commends Dr. Collins for Citing NEI's Human Gene Therapy Research in House and Senate Appropriations Subcommittee Hearings on FY2011 NIH Funding

(Washington, D.C.) On April 28 and May 5, National Institutes of Health (NIH) Director Francis Collins, M.D., Ph.D. testified before the House and Senate Subcommittees on Labor, Health and Human Services, and Education (LHHS), respectively, on Fiscal Year (FY) 2011 funding.

Early in his testimony at both hearings, Dr. Collins played a video entitled "Corey’s story," which featured a recipient of human gene therapy for Leber Congenital Amaurosis (LCA) navigating a maze unsuccessfully prior to the procedure, then successfully after the procedure. This research, funded by the National Eye Institute (NEI) in conjunction with private funding organization Foundation Fighting Blindness (FFB) at Children’s Hospital of Philadelphia, was featured in a June 2008 Alliance for Eye and Vision Research (AEVR) Congressional Briefing.

The research received such prominence at the recent appropriations hearings that NAEVR has written to Dr. Collins thanking him for featuring it.

In that letter, NAEVR also informed him that the vision community was subsequently represented by Neil Bressler, M.D., who testified on behalf of increased FY2011 NIH/NEI funding at the May 12 House "Citizen's Witness" hearing.

On April 12, NAEVR filed written testimony with both the House and Senate LHHS Appropriations Subcommittees urging FY2011 NIH funding at $35 billion and NEI funding at $794.5 million.

The National Alliance for Eye and Vision Research (NAEVR) is a 501(c)4 non-profit advocacy coalition comprised of 55 professional, consumer, and industry organizations involved in eye and vision research. Visit the Web site at